This last week has been a bit of a ride for us. Well, to be completely honest, it has been quite the ride since our son was diagnosed with type 1 diabetes in 2015. But this week, he got his insulin pump, and we had to learn how to not kill him all over again. The learning consisted of us sitting in a classroom at the University of Alberta, with 8 other families, all with children there, while two nurses stood at the front of the class, and tried to cram as much insulin pump knowledge into our heads as we could handle before we all exploded.
To say this was stressful would be an understatement. I am not a fan of kids, and this classroom had kids of all ages (mine was one of the oldest) running amok for 3 days. Lucky for us, there was a small room in the back of the classroom (the old projector room) and it had a door. Score for me. I stuffed my kids in there for the training and let them go rampant on their iPads. Grade A parenting? Probably not, but I give zero shits. I wish I could say that solved all of the annoying kid problems, but that would be a lie.
That is not to say I didn’t feel bad for these kids. The little girl in front of us was less than 3 years old, and she had an insulin pump stuck to her tiny little chubby belly. I felt so bad for her, but laughed when she spilled her moms Perrier… we are all in this together. And the fact that she called it “rotten juice’ just made me snort laugh. She may have her insulin pumping into her from a thing on her hip, but she is still a funny little kid.
We learned a lot, one of the things I learned was that I could run on less than 2 hours of sleep and not murder the snotty bitch sitting in front of me. So, score for me. I also learned that the carpet in there is no longer stain resistant, and that you can smell spilled iced caramel macchiatos for hours after sopping them out of the rank ass carpet. I really think I did that aisle a favor – at least our area was aromatic in a good way.
For months leading up to this, I have been stressed and trying to remain calm; trying to convince myself that I can actually pull this shit off. But for months, all I have wanted was a shoulder to cry on. And while I did get that sometimes, I mostly heard “you are strong. You will be fine”. And while I appreciated the kudos and props, I didn’t believe it. And to me, that more or less just felt like placating so that people didn’t have to hear me talk about diabetes anymore.
I have lost so many people because of this disease. My life is no longer my own, and I lack new things to talk about most days. I am tired. I was up all night. Middle-little’s numbers are rubbish. Bla bla bla. But you know what? That IS my life right now. That is not to say I don’t miss my friends, or my sons functioning pancreas. But alas, not all things last forever…. and with his pancreas, so along went a lot of my friendships. C’est la vie.
I know I can do this. I know I am strong. I know I am capable. I know I am smart. I know that my son is lucky to have me. But some days, I don’t fucking want to anymore. I want to crumble. I want to bawl. I want to have a total hissy fit and throw things. I want to spit at the heavens. I want to sleep through the night. I want to sit down and eat without doing math. I want to fucking fall apart. But I can’t. It hasn’t been allowed of me.
You know that old saying “you don’t know how strong you are until that is your only option” WELL! I fucking knew how strong I was and I didn’t need a lesson or reminder… and yet, here I am!
Some days I feel like it is totally unfair. Not for me, but for my son. He doesn’t deserve this. He doesn’t deserve this future; this mortality hanging over his head for the rest of his life.
But it could be worse.
He has me. I am strong. I am smart. I am tenacious. I don’t give up. I am strong. I am strong. I am strong.
I am also fucking exhausted.