November is DIABETES AWARENESS MONTH, and while to most that means nothing, to us, it means the world!
Our son was diagnosed on November 9th, 2015. And we were in the hospital, learning how to keep him alive at this time last month, so we didn’t really even know what the month represented. To us, it was just the month that we celebrated our youngest sons birthday, and me and my husbands wedding anniversary. Now, it means so much more.
So, in an attempt to educate, advocate and get the word out about what almost took our boy away from us forever, I’ve been posting things about diabetes every day. And do you know what I have noticed? Really, nobody gives two shits! (except for the people it also directly affects, with the exception of VERY few)
I am sure there are people (family included) who sit behind their screens and scoff every time I make a diabetes post. And do you know what I have to say to them? “I hope something horrible never happens to you or your children.. because this sucks. And on another note, go sit and spin, you self-indulged asshats” And while that may lose me some people, that’s okay. Because at the end of the day, do I need those people in my life? The people who don’t really care that we are trying to teach people about what our life has become? No, I certainly do NOT.
Because while it may be seen as an inconvenience to see yet another diabetes post “clogging” your news feed, I can assure you, what it has done to our life is FAR WORSE and harder to deal with. And I can assure you, the people I am referring to are the ones who clog up their own news feeds with the most insignificant drivel, ridiculous re-posts, bullshit that doesn’t really affect anyone, worldly advice (that they probably don’t incorporate into their lives but want to sound worldly), or posts to flaunt their shit and things. And chances are good I am thinking the same thing about your posts.. “Oh look, another dumb post…”(PSA: this is directed at no one person in particular… just a generalization. So don’t go getting your panties into a knot if you fall into an aforementioned category)
That’s fine. Everyone is entitled to their own life and opinion. And I am not going to sit here and say that I have never posted drivel or inspirational crap, because I have. But I am also trying to bring light and understanding to a disease that was days away from stealing my baby from me, forever.
Until you have watched your own child fading away, begging for help and peace, crying over their tiny wrists and protruding hip bones, losing sleep over what is wrong with them, losing sleep over the possibility of losing them every single night, losing sleep over their insulin dose, why their numbers are so high, what did they eat, knowing every carbohydrate that enters their mouth, forcing water down their throat, crying because this is their fucking life now… until you have lived the hell, you will never get it.
I am going to continue posting about my son, because who knows who it might help. The symptoms masquerade themselves as so many different things. Our son was sick for a long time before his diagnosis, and it was written off as a multitude of different reasons. That’s what it does – it hides in the corner, wearing different masks, and lures your child into the darkness.. and for lots of kids, they never come out of the darkness, and they’re lost forever. Luckily, I am very stubborn and knew better. Lots of parents aren’t so lucky.
So THAT… that is why I am posting every day. Because someone might get to hear their child laugh for another day because of something I said. And that means more to me than likes and comments and activity on my posts.
So you keep posting what you want to, and I’ll keep posting about this. We can both coexist, and that is fine. I just hope, to these people who find more importance in their ridiculous shit on facebook than showing support to an 11 year old who fights a beast every single minute of every day, that nothing ever happens to your family or children. Because it is a different story when that coin is flipped.. and let me tell you, it is awfully lonely on this side of the coin.
People just don’t get it until they get it. And I pray to shit, you never get it.