The last few days have been trying. That’s not to say that the previous days were particularly easy, but we were handling it.
Slight catch up. My middle son got diabetes in November. And it has not been all sunshine and rainbows since then. I am beyond grateful that we caught it when we did, but a part of me will always grieve for the piece of my son that was lost on that day. He is such a beautiful boy, with an amazing heart and a promising future. He is so full of life and humor and love. And no matter what we do now, and how hard we try, there will always be a part of him that was taken away that day. I will fight until my dying breath to make sure that my baby is happy and taken care of, and always do my best to remind him of his inner light.
But like I said, the last few days have been hard on him. There is so much about this stupid asshole disease that is literally left up to trial and error. There is so much guessing and testing and trying. So much of it resides in the grey. It is not as cut and dry as most diseases, and that makes it SO FUCKING INFURIATING!
Why? Why are his normally stable numbers all of a sudden creeping up? From a steady 6-8 to an 11, then 14, then 15, and then from there, there was no going back. We battled. We rallied. We racked our brains as to how to fix it, why it was happening, what could have caused it… We threw out his insulin and gave him a new cartridge, we revamped our meal plan, I went through 2 months worth of numbers and food logs and checked for any patterns, we made him sleep more, drink more water, have more protein, increased the insulin to carb ratio, increased his lantus dose… I did everything that any professional would do in my position.. and then I hit my breaking point.
I caved and called the Health Link. In my province, it is a call center run by nurses who listen to symptoms and help you decide if you need the doctor or emerg or maybe some allergy pills. More often than not (I would say 98% of the time) they send you to the doctor anyway, but I still call. I will not be doing that again! While it is useful for some things, they are not allowed to do shit about kids with diabetes. I told her “I have everything sorted, I just have one question” and I asked it, and all she did was reprimand me on his numbers and told me to call his nurse. THANKS TIPS!! After completely exacerbating myself with that very nice, albeit completely useless, woman, my sons diabetic nurse finally called me back.
Our regular nurse is no longer at the health unit, so we have a new lady that I have yet to meet. She seemed very nice, but upon telling her my story, my frustration overfloweth, and I had a little breakdown while on the phone with her. We talked for an hour, she reassured me that I was doing everything right, and that I was a good mom and he was lucky to have me… but I can not begin to tell you how broken I felt. While she did make me feel a bit better, and we did hash a few things out and get some ideas going between the two of us, I still feel like I am failing my son because I can’t fix him!
Why is he high? These are the reasons we came up with….
- he was left high all weekend and his body built up a resistance to insulin (yes, that bullshit is legit)
- he is going through a growth spurt
- he didn’t sleep enough and his body is feeling insulin resistant
- he is fighting some sort of infection or illness
- he is dehydrated
- he is stressed out about something
- he isn’t rotating his injection spots enough and his tummy is building up an insulin resistance
- his insulin was somehow exposed to extreme temperatures and it’s garbage
- his carb ratio needs to be adjusted
- he needs more of his all-day-long insulin
- his “honeymoon” phase is over
- who. fucking. knows.
There are literally so many reasons why diabetics sugar levels go all psycho, but all I know, is that his did. I do know a few of those things are true, and I busted my ass for him to rectify that which was done wrong for him (no fault of my own).
I am his person. I fight for him, so he doesn’t have to. I fight and bust my ass and lose sleep and feel insane, so he can have a semblance of a childhood. But we still had to get to the root cause of his stupid high numbers.
He has had a runny nose, but hasn’t complained once. Not once! So after he texted me his lunchtime number today, I decided to pull the mommy card and yank him out of school, so I could have him home for a big chunk of time, and focus on him and getting him better. Being excited can raise blood sugar, and with him already higher than I would like, I figured being at school would just perpetuate it. So, he came home! And on the way home, he was really sniffly. It hit me! “is there any sort of pressure or pain in this part of your nose?” And he said yes. BAM. I had my answer (well, part of it.) It is now believed that after his numbers were left high for a whole weekend, his body was stressed enough to allow him to get sick again. I gave him a sudafed (pharmacist approved) and had him drink a liter and a half of water, gave him his correction insulin… and for the first time in 4 days, I got him below 10!! I almost cried. He almost cried. And I kept it down all day. It was one of those moments where you just feel totally relieved.. and yet, stressed at the same time.
This is his life now! This is what we have to look forward to forever. Any time he is sick, or stressed, or excited, or sleep deprived, going through puberty, doesn’t drink enough water, his body decides to be an asshole, etc etc… I feel so sorry for him.
This whole disease is a crock of shit. I am just hoping and praying that there are some amazing advances in the field in his lifetime, so he can maybe have a bit of an easier time.
But for now, know this. Diabetes sucks ass. It is a crock of shit. My heart shatters when I think of what my funny happy baby has to go through now. But I will be by his side, doing what I can, for as long as I can. And maybe even longer.. haha, I am pretty stubborn, I’m not sure I will ever allow anyone to tell me I am not needed. Oh yes, I believe I may be one of “those” mothers… bwahahaha!!